Jenna and Patrick were able to
meet Natalie in March 2007
OUR PARTNERSHIP
Natalie's Wish & The Cystinosis Research
Foundation
There are a
few wonderful support groups and organizations that we
have turned to as a family dealing with Cystinosis (see links
below).
We are honored to be working closely with an organization that
has become really special to us this year. The Cystinosis
Research Foundation is the world leader raising money for the
research and better treatments
of this disease that afflicts both of our children and others
around the globe.
When Jenna
and Patrick’s Foundation of Hope was created, we quickly learned
that the Cystinosis Research Foundation was years ahead of us in
funding the study of Cystinosis. They are currently funding
cutting edge research by dedicated and knowledgeable doctors who
are studying this disease (see research tab). It was clear we
didn’t need to reinvent the wheel.
We are proud
to announce that 100% of the funds raised for Jenna and
Patrick’s Foundation of Hope will be passed along to the
Cystinosis Research Foundation. Each year at the Natalie’s
Wish benefit, we will present a check to this dedicated
organization, knowing that ONE HUNDRED PERCENT of the monies
you’ve so generously donated will be used for the research and
treatments—and perhaps someday a cure, for Cystinosis.
Cystinosis
Research Foundation /
Cystinosis
Research Network /
Cystinosis Central /
Cystinosis Foundation UK
